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Post by em on Oct 30, 2019 15:23:08 GMT 7
Not for me personally but the meds were meds that are used for narcolepsy and for adhd so yes they said he can not do that again. They basically told him to stay in his lane because he’s a cardiologist. But this is how ridiculous it is that clink are using these treatments to deny me when my own dr can’t even do these treatments anymore Well that gives a bit more insight into why your Doctor can not prescribe it..... I totally understand now. I am also a bit surprised that a cardiologist would want to prescribe something that is so damaging to the heart muscle. Maybe it’s all a bit more complicated than I first thought I guess as I am sure your dr would have weighed up the dangers against the hoped positive outcome of you trialling stimulants. Yes unfortunately it’s become a very complex situation.. I was shocked when they said I was a complex case because the team I have got now see all the people in Perth with my conditions.. . he said it might make the heart symptoms worse but he was trying to give me some quality of life.
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Post by nomadic on Oct 30, 2019 18:44:13 GMT 7
sorry but I cannot comprehend any of this absolute madness. A GRoWL is nowhere near enough. Angry beyond belief as to what is going on and my attempts today to get the media to take it up only resulted in discrimination against me also. Hang in there em is all I can suggest because WE must defeat them once and for all.
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Post by tasjo on Oct 30, 2019 19:07:37 GMT 7
Em - I think you need to take this to the AAT... Centrelink jca and aro rarely understand whether a treatment is reasonable or not and hence whether you meet the fully diagnosed treated and stabilised criteria.
By reapplying and not going to the AAT with any claim you are staying in a ludicrous loop (I was in the same situation)
With a capacity of 0-8 virtually no des provider would be willing (or able) to provide you with what they are intended to do. You stay on an exemption, therefore are not actively engaged, therefore cannot meet the POS requirement.
The way out of this is to find a time you were actively engaged and exit the POS... Find a date before you applied for DSP and get exited from the POS on health grounds. Then appeal to AAT with all criteria covered. Make sure you highlight that treatments available are not 'reasonable' and why that is the case.
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Post by tasjo on Oct 30, 2019 19:11:35 GMT 7
Sorry if this is blunt em but it's the only way I can think to end the madness...
Get your file from FOI so you can find a time you were actively engaged. If your des provider refuses to exit you on health grounds, contact rachel siewarts office and ask for their advice on this issue. I will find the form number that you need to fill out and the provider signs to say they have exited you.
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Post by em on Oct 30, 2019 20:39:40 GMT 7
sorry but I cannot comprehend any of this absolute madness. A GRoWL is nowhere near enough. Angry beyond belief as to what is going on and my attempts today to get the media to take it up only resulted in discrimination against me also. Hang in there em is all I can suggest because WE must defeat them once and for all. It’s all so confusing! That is sad about the media, it is good that you are at least trying though thank you. Support groups keep me going!
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Post by em on Oct 30, 2019 20:44:57 GMT 7
Em - I think you need to take this to the AAT... Centrelink jca and aro rarely understand whether a treatment is reasonable or not and hence whether you meet the fully diagnosed treated and stabilised criteria. By reapplying and not going to the AAT with any claim you are staying in a ludicrous loop (I was in the same situation) With a capacity of 0-8 virtually no des provider would be willing (or able) to provide you with what they are intended to do. You stay on an exemption, therefore are not actively engaged, therefore cannot meet the POS requirement. The way out of this is to find a time you were actively engaged and exit the POS... Find a date before you applied for DSP and get exited from the POS on health grounds. Then appeal to AAT with all criteria covered. Make sure you highlight that treatments available are not 'reasonable' and why that is the case. Thank you, yes I am going to take this to the AAT and highlight everything in the legislation of why I should be included. I was actively engaged but they told me go for DSP. I did email Rachel siewarts office and what I said above in this post was actually the email from their office. I am trying to get back to them about a backdated program of support. I think I will call them again tomorrow. Technically I think with my heart conditions and chronic fatigue I do fit 20 points, because even though I have good days and bad days if I push myself on a good day it will result in severe flare up. I actually had a cardiology appointment one day the day after I pushed myself to go shopping. The next day at the cardiologist my heart rate was up to 140bpm (with my meds that lower my heart rate too). I think he must have written a summary of that appointment I saw it on my other specialists computer (something about my heart rate being 140) so maybe this will be good evidence to show them I have severe post exertional problems. I still want to get the POS exit sorted though because unfortunately I feel like they will say I can do more than I can.
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